Tuesday, March 8, 2011

What's going on with baby

My son is now 5 weeks 4 days old. His gestational age is 32 weeks. He technically should still be cooking inside, but he's out here and fighting. Some things going on with his life:

  • He is on CPAP respiratory support. Continuous Positive Airway Pressure is commonly used with premature babies as their lung tissue continues to grow. While we wish S could breathe on his own, the CPAP is a step up from being ventilated. A ventilator would be damaging to his lungs, and we're happy he isn't requiring that kind of therapy. It's going to take time, but he'll get strong.
  • He weighs 1700 grams. (Everything in the NICU is metric, by the way.) That is equivalent to 3 pounds 12 ounces. His birth weight was 2 pounds 4 ounces and he dropped down to 1 pound 14 ounces when he was a few days old. Today, he doubled that weight! He's an all star in the weight department, right on the average curve. 
  • Baby S does not need any type of digestive help. He loves to eat and is up to 30mL's every three hours, given via Gavage tube over one and a half hours. That's 8.1 ounces a day! What a big jump from his 1 teaspoon a day.
  • He has been tested numerous times for many different reasons, and all those tests came back negative or all clear. They are: cranial ultrasounds, vision tests, digestive scans, among others. We still have more testing along the road but this is a positive start. 
  • He received his third blood transfusion, because he was anemic and showing clear signs of it. He's doing much better after receiving that gift from a stranger. 
  • S is on a number of medications/supplements: caffeine to aid in his Apnea spells, poly-vi-sol vitamins to provide more iron, sodium to keep his electrolytes in check, Reglan to help quicken digestion to lessen acid reflux, Zantac to reduce his acid reflux and a daily diuretic in place of Lasix to help keep his lungs and chest cavity fluid free.
  • He's getting rounder and chubbier by the day. His isolette is now fitted with an interesting contraption that resembles a dinosaur skeleton, used to hold up his CPAP prongs so he can lay on his back with his head flat. The wonderful nurses have begun to shape his head and we've noticed a difference very quickly. 
He's still got a long road ahead of him. He has to learn to breathe on his own, and get off the CPAP before he can start getting food by mouth. Once on nasal cannula oxygen, he will have all the feeding hurdles to cross. Throughout all of this, he needs to make it 5-7 days with no spells at all to come home. It could be weeks or even months before he makes it home. We're trying our best to be patient but we want our baby with us. He'll make it. The doctor informed me the NICU is not outfitted for preschoolers, so we should expect him before then. :) Silly doctors.

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